Archive for ‘Podcasts’
This podcast explores cognitive issues in multiple sclerosis. Caroline Craven aka The Girl With MS shares the impact of MS on her short-term memory, word-finding ability and multitasking skills. She talks about the role of stress, sleep and mood have on her cognition. Caroline reviews how she copes with these changes partially through diet, exercise and good sleep. Abbey Hughes PhD, a rehabilitation psychologist from John Hopkins, outlines ways to deal with memory and multitasking obstacles for those living with MS. Strategies to help cognitive functioning are shared including task completion tips, journal use, brain empowering apps, speech therapy, stress reduction and depression control. Screening tools to check for cognitive problems such as brain processing speed reviewed. MS brain changes and key ways to maintain brain health and better cognition emphasized.
Barry Singer MD, Director of The MS Center for Innovations in Care interviews:
Caroline Craven aka The Girl with MS is a certified life coach, writer and motivational speaker. Her writing focuses on articles in health journalism and highly rated blog. Her blog post topics range from personal experiences, research-based articles, recipes, life hacks and resources.
Abbey Hughes PhD is a clinical psychologist with expertise in rehabilitation psychology and multiple sclerosis rehabilitation. She is an Assistant Professor of Physical Medicine and Rehabilitation at John Hopkins. Her clinical and research interests include the assessment, treatment and management of psychological and cognitive difficulties associated with multiple sclerosis including adjustment to disability, sleep disturbance, fatigue, depression, anxiety, and problems with thinking or memory.
Telemedicine is use of electronic technology to allow exchange of health information between locations. The use of telemedicine has rapidly become the standard for patient visits with their neurologists since March 2020. To reduce the risk of COVID-19 exposure by going to a doctor’s office, remote appointments have become routine with use of phones, tablets and computers. Dr. Krieger from New York City and Dr. Okai from Dallas discuss their early insights to advantages and disadvantages of the new virtual appointments for their patients with multiple sclerosis. Tips to navigate the technology and improve your virtual visit shared. These MS experts share their advice on whether you should have a virtual appointment now or wait for an in-office appointment. The neurologists also speculate on the future of telemedicine.
Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center, interviews:
Annette Okai, MD is a MS specialist and Medical Director of the Baylor Scott & White Multiple Sclerosis Treatment Center in Dallas, Texas. She completed her residency in Neurology in 2006 and fellowship in Neuroimmunology in 2008. Dr. Okai interests include studying multiple sclerosis in diverse populations and the utilization of conventional and novel MRI techniques in multiple sclerosis.
Stephen Krieger, MD is a MS specialist at the Corrinne Goldsmith Dickinson Center for MS at Mount Sinai in New York. He is an Associate Professor of Neurology at the Icahn School of Medicine at Mount Sinai and Director of the Neurology Residency Training Program. He created a topographical model to better understand MS disease course that has been adopted globally.
At the height of the COVID-19 pandemic, neurologists from major multiple sclerosis centers from Barcelona, Spain and Rome, Italy share their experiences on the front lines. Spain and Italy had the highest rates of COVID-19 infections until surpassed by the United States. These MS specialists share how they are supporting and advising patients during this crisis. Virtual appointments and changes to MS treatment reviewed. The neurologists share what happened to people with MS that were infected with this coronavirus in Italy and Spain.
Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews:
Giovanna Borriello, MD, MS Neurologist working at the MS Center in the academic Hospital Sant’ Andrea in Rome, Italy since 2001. She had been an investigator over 40 clinical trials on multiple sclerosis including trials focused on new treatments. In 2011, she founded a non-profit organization, called “Semper Mobilis” Onlus, for people living with MS, to give them reliable and updated information, to assist their caregivers with psychological and nursing support in the management of the disease and to offer best practices to healthcare professionals in the multidisciplinary setting with specific courses and update activities.
Jaume Sastre-Garriga MD, PhD is the Deputy director of Cemcat, The MS Center of Catalonia in Barcelona, Spain. Dr. Jaume Sastre-Garriga received his MD at the University of Barcelona and his PhD at the Universitat Autònoma de Barcelona. He trained as a neurologist at the Neurology Department, Vall d’Hebron University Hospital. He serves on the executive board of RIMS (Rehabilitation in Multiple Sclerosis) and the steering committee for MAGNIMS, the European networks for best practice and research in MS rehabilitation and MS MRI imaging, respectively. Dr. Sastre-Garriga has published over 100 scientific articles in the past decade and serves on the Editorial Board of the Multiple Sclerosis Journal.
Multiple sclerosis experts share invaluable information regarding pregnancy and multiple sclerosis. The podcast covers pregnancy planning for a healthy baby while minimizing risk of multiple sclerosis disease activity. Topics of unplanned pregnancies, birth control and role of high-risk obstetricians addressed. Infertility and the role of in vitro fertilization in woman with MS covered. Genetic risks to children and pros and cons of nursing addressed. Information for men who want to father children reviewed.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Claire Riley, MD is the Director of the Multiple Sclerosis Center at Columbia University Irving Medical Center since January 2012 and an Assistant Professor of Neurology. She earned an undergraduate degree from Dartmouth College and a medical degree from Vagelos College of Physicians and Surgeons (VP&S) at Columbia University. She completed her residency in neurology and 2-year clinical fellowship in multiple sclerosis at Columbia University Irving Medical Center. She was previously an attending neurologist and assistant professor in the Yale MS Center in New Haven, CT. Dr. Riley regularly teaches medical students, residents and fellows in the MS clinic. She is also an investigator in clinical trials related to multiple sclerosis.
Amy Perrin Ross, APN, MSN, CNRN, MSCN is a board certified neuroscience nurse and the Neuroscience Program coordinator at Loyola University Medical Center in Maywood, IL. She obtained her BSN and MSN from Loyola University Marcella Niehoff School of Nursing, Chicago, IL. As an advanced practice nurse, she coordinates the multiple sclerosis clinic at Loyola University Medical Center in Maywood, Illinois. In her role at Loyola, she has coordinated multiple clinical research trials in multiple sclerosis. She is a Past President of the International Organization of Multiple Sclerosis Nurses. She has authored numerous articles and book chapters on multiple sclerosis. In addition, she has served as a clinical nurse consultant with the National Multiple Sclerosis Society, a member of the Health Care Advisory Council for the Multiple Sclerosis Association of America, and a board member of the Consortium of Multiple Sclerosis Centers. She has been an invited speaker at national and international meetings and conferences and has been very active in neuroscience clinical research for over 20 years.
Multiple sclerosis experts share advice on how to substantially improve your care when interacting with your neurologist. Key insights to develop trust and understanding with your doctor reviewed. Compelling info to help you advocate and communicate your desires and needs. Specific ways to make the most of your appointments addressed. Difficult questions are tackled such as progressive disease and long-term planning. Managing MS symptoms and wellness highlighted. Benefits of reviewing MRI images in the exam room outlined. Excellent tips on how to access free medication and MRI programs for people who are uninsured or have high out-of-pocket costs.
Barry Singer MD, Director of The MS Center of Innovations in Care at Missouri Baptist Medical Center interviews:
Flavia Nelson MD, Associate Professor of Neurology, Director Multiple Sclerosis Division at University of Minnesota in Minneapolis. She completed her residency and multiple sclerosis fellowship at University of Texas Health Science Center in Houston, Texas. Dr. Nelson has served as Chair of Department of Defense Panel for Multiple Sclerosis Research Program, committee member on Consortium of MS Centers MRI Guidelines Committee and Chair of International Advisory Board on Brain Atrophy and MS (2016).
Timothy West MD, MS Neurologist, Rocky Mountain Multiple Sclerosis Clinic in Salt Lake City, Utah. Dr. West completed medical school at the University of California-San Francisco (UCSF) and fulfilled his residency in neurology at UCSF. He has had extensive experience and research in the area of MS, including at the Cleveland Clinic Lou Ruvo Center for Brain Health in Nevada, the Sansum Clinic in California, and the UCSF MS Center in California.
Oct 10 2019 MS Living Well Podcast: Cannabis & MS
Multiple sclerosis often causes nerve pain with burning and pins-needles sensations and spasticity associated with muscle tightness and cramping. The specific role of medical marijuana components including THC and CBD in MS in alleviating these MS symptoms addressed. Information regarding which MS patients are more likely to benefit from cannabis are reviewed in depth. Risks and concerns of cannabis use in MS addressed. All national, state and local laws should always be followed.
Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews:
Allen Bowling, M.D., Ph.D. , MS neurologist at the Colorado Neurological Institute, Denver, Colorado
Jacob Sosnoff, Ph.D., Associate Professor in Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign.
Country living far from large cities has wonderful advantages, but can present some unique challenges to receive optimal multiple sclerosis care. This podcast addresses when it’s time to drive to see a MS specialist. MS experts share their wisdom on various strategies to access the most current treatments while still enjoying life in countryside from the plains to the mountains. Creative ways of coordinating care between local heathcare providers and MS specialists in MS centers described. Emerging telemedicine options reviewed to get remote care.
Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews:
Susan Scarberry, MD, Sanford Medical Center, Fargo, North Dakota. Clinical Associate Professor of Medicine at the University of North Dakota School of Medicine and Health Sciences.
Gabriel Pardo, MD, Director, OMRF Multiple Sclerosis Center of Excellence, Oklahoma City.
Remyelination: Repairing Multiple Sclerosis
Myelin is the coating on the nerve cells (neurons) of the nervous system that allows messages to travel rapidly in our body. Myelin wrapped around the neurons also keeps neurons healthy. In multiple sclerosis, the immune system attacks myelin disrupting electrical signals and making neurons vulnerable to chronic damage. Remyelination is the strategy to recoat the nerves with new myelin. Myelin-making cells called oligodendrocytes (“oligos”) are described. The podcast reviews recent laboratory breakthroughs in screening for new treatments to turn on immature oligos to repair myelin. The exciting initial steps are presented regarding the transition from the laboratory research into clinical trials with multiple sclerosis patients.
Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews:
Ari J. Green, MD, Chief of Division of Neuroinflammation and Glial Biology, Medical Director of the Multiple Sclerosis and Neuroinflammation Center, Debbie and Andy Rachleff Distinguished Professor of Neurology, Departments of Neurology and Ophthalmology, University of California San Francisco.
Sep 3 2019 MS Living Well Podcast: Winning Strategies in Multiple Sclerosis Treatment: Don’t Underestimate the Disease.
Treatment approaches to multiple sclerosis continue to change. Over the past quarter of a century, MS went from an untreatable disease to a disease responsive to a broad array of oral, intravenous and self-injected medications. Greater long-term disease control is now possible for more people living with MS. However, undertreatment can result in significant physical disability including imbalance, weakness, visual loss, incontinence and pain and significant cognitive impairment including short-term memory loss, multitasking impairment and word-finding problems. This podcast outlines different treatment strategies to maximize quality of life long-term to realize your individual goals with the least disability. Information is presented on which people with MS might be at increased risk of disability and need early use of a highly effective medication. Treatment safety is weighed against the treatment benefits and risk of long-term disability.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews two amazing MS specialists who are also phenomenal patient advocates:
Heidi Crayton MD, Director of The MS Center of Greater Washington in the Virginia suburbs of Washington, DC. Dr. Crayton completed her neurology residency and multiple sclerosis fellowship at Georgetown University Hospital. She is a national leader in MS treatment and clinical trial investigator.
Aaron Boster, MD, is an MS expert at Ohio Health in Columbus, Ohio. Dr. Boster completed his neurology residency at the University of Michigan in Ann Arbor and a fellowship focused on clinical neuroimmunology and multiple sclerosis at Wayne State University in Detroit. Dr. Boster continues to be active in clinical research, authoring academic publications and lecturing globally.
Available now! Dr. Susanne Bennett on RadioMD interviews Dr. Barry Singer on the symptoms and signs of multiple sclerosis. He discusses genetic and environment risk factors for MS. Wellness including exercise addressed. Impact of treatments on preventing disability reviewed.